Our time in the NICU was hard and healing and overall sacred time. We were there long enough to watch several other babies come and go with their families and I admit, I was jealous. Jealous because they got to go home, and sad because I knew that while most of these other infants would outgrow whatever brought them to the NICU, we were different. You don’t just outgrow a major chromosomal abnormality or the complications that come with it. That was hard. But that time was also healing. Lydia was diagnosed at birth. After that shock I found that I could either sit in my room and panic about the future, or I could sit with my baby in the NICU, hold her, get to know her, pray, and think, “This is you. This is me. This is today. We can do today.” We’re still doing that.